Life · Military Spouse Life

PTSD and the Blackout Effect

I swear the next time the VA decides to mess with his medications, I’m sending him home with them for a week……they can live my nightmare and see what they are doing to all the military families out there.

As much as I love my husband, his PTSD/TBI (Post Traumatic Stress / Traumatic Brain Injury) causes lots of issues. It regularly makes me think we won’t make it (though deep down, I know we will).

The VA decided to switch his medications, yet again. The result? It’s the same every time. He gets angry, spiteful, depressed, and basically, in short, turns into a jerk. It gets to the point where I’m in tears and heartbroken.

He says things I don’t think he really means…and half the time, he says hurtful things and then doesn’t remember later. I’ll call him out on the things he’s said, and he is genuinely surprised and doesn’t remember.

It’s painful.

I feel like I live on the edge with this. He could snap at any time and have a “PTSD episode” where his anger just takes over. He basically turns into a monster…. then after a few days, things calm down, and he returns to himself. It’s the time when he’s angry and mean that puts me on edge. I worry about what will happen. I’ve even worried about him hurting me.

I don’t tell you this to bash him.

It’s actually not his fault. It’s the fault of the combat-related PTSD/TBI. It’s the VA not helping us.

I know there are lots of military spouses out there going through the same thing. I see it daily in all the support groups in which I belong.

It’s like living with two different people, and the VA isn’t aggressive about taking care of our veterans. Sometimes they don’t take care of them at all.

All those things you see and hear about the VA are true….sometimes it’s worse. It’s worse when you actually live with it every day.

Sometimes it takes months to get an appointment. Literally months……then you get there and it was cancelled and no one told us. They tell you to call the appointment line and start again.

Last week they then called me to tell me they would call to make an appointment….yes, that actually happened. JUST MAKE THE APPOINTMENT.

Then he has to drive 90 minutes each way for a consult. It’s hard on his back. It’s aggravating to his knees. No one should have to drive 90 minutes for a doctor consult.

I watch him suffer. Then I suffer.

The circle continues.

It’s lonely.

It’s painful.

I cry…. a lot.

I spend a lot of time on the phone with my mom, upset and asking why he is doing this. I fear I have to take my kids and leave. I fear he will never get the help he needs. I fear our lives are over as we know it.

Then he comes around like nothing happened. He doesn’t remember half of what happened. He’s seemingly okay for awhile….then the cycle starts again.

This past week it was a phone call to me at work freaking out about the dogs, threatening to get rid of all my dogs. He was so angry and threatening…I grabbed my computer at work, told my (very understanding boss) I had to go, and flew home.

It’s a long 30 minute drive.

My dogs were okay.

He’s fine with them now. He was upset one got into something she shouldn’t have….

He actually has the biggest heart of anyone I know. When it comes to animals and rescue, he would take every abandoned or hurting animal and save them. When he has these “episodes” he’s just a different person.

The medication switch makes everything so horrible. The best part? The VA MAILS his medications …yes, through the MAIL. So we have to wait for them to fill it, mail it, and for it to be delivered. Meanwhile, they have him decreasing the one he was on and he’s off balance. We’ve done this at least two dozen times already. Medication only masks the problem. It’s not a solution…..changing it constantly makes it WORSE!

Is there really no way to have a regular pharmacy fill a prescription and bill the effing VA so we aren’t all suffering?

By the end of the weekend, things had returned to normal, but when will it happen again? When will I feel alone? scared? hurt? When will I feel like I can’t take it anymore? It’s a lonely place to be!

Today some new medicine came. I also got a letter they sent us the wrong disability pay, so they will be taking it back. Do you know how frustrating it is to have pay constantly messed up? Then our normal pay is reduced to fix their mistake, and I can’t plan for bills…..

If someone were to say they are thinking about joining our military, I would tell them to thing twice. It’s a noble and amazing, selfless thing to do, but it’s not appreciated by the government who continues to leave the veterans and their families out to dry.

I will be updating the Resources page over the next few days for those finding themselves in the same situation….hopefully we can find things that actually work!

Life

When the Game Plan Changes….

Yesterday started out challenging……

I have been “working from home” for two days so my husband can take care of all his appointments and such with the VA. (Also, shout out to the VA for continually canceling his appointments when he gets there….jerks!)

Here are some hard facts about working from home:

  • Kids don’t understand the concept and think it’s time to play with you and distract you,
  • Your husband thinks it means you’re available to help clean the house, watch kids, and take care of everything while he does other “projects,”
  • Nothing gets done,
  • You rather be at the office!
  • You feel like the following:

Image may contain: fire and text

I then had another bomb dropped on me. I thought I would be partnering with another yoga studio in the area…and now she’s not so sure. (I will say she has A LOT going on, so I actually understand).

I’m crushed. We had plans to teach and to launch a wellness magazine in the area.

So as I sit with screaming kids all around me, I feel lost.

I thought I was finally going to be able to teach yoga full time and spend more time with my kids and husband.

It was even harder to get work done knowing this. I felt like I needed a new plan.

When the morning was over, we found ourselves racing to couples therapy (and of course we were late). As you may have read last week, we are about over this shenanigan. Seriously, we are better when we are NOT in therapy. I don’t have such an urge to kill him all the time (not literally….) When we walk out of therapy, we are fighting and angry…but we press on.

Everyone agreed the relationship between us would be better if I worked from home all the time. Crazy, right? Considering how insane my house is during the day. The flip side is leaving each day to go to work when your husband has combat-related PTSD/TBI can make leaving the house for extended periods of time an absolute nightmare…

So I’m setting new goals.

It’s no secret writing is what makes me happy. It’s what I want to do for a career and it’s what I would do even if I didn’t have to work…along with teaching yoga. Teaching yoga makes me so happy and helps my own mental status (I have Major Depressive Disorder and Anxiety), so I won’t ever give up teaching.

I’m determined to find my own way as a writer and instructor so I can work from home. As chaotic as working from home can be, it will make for better relationships at home and with my husband.

Have you ever worked from home? What challenges did you face and how did you overcome them?

 

Life

The Therapy Backfire Conundrum

We went to therapy.

Couples therapy.

It was supposed to help.

We were supposed to engage in couples therapy for an indefinite amount of time.

It was supposed to make it all better.

WE HATED IT.

Crazy, right? Therapy is supposed to help!

Let’s back up a bit, shall we?

My husband gets out of the Marine Corps and we are still living in Charleston, SC (USA). We decide to move to Illinois (his home state) a few years later. His PTSD has worsened, my depression isn’t always great, and we want to be near family.

We wait 10 months for the VA to get my husband into any type of therapy.

Read that again…..

We wait 10 months for the VA to get my husband into any type of therapy.

I would call and call and call….eventually we find out the therapy is better if we go to the Vet Clinic. The VA is a complete waste of time. They did nothing to help us keep him in therapy when we moved between states. The suggestion to go to the Vet Center is a God-send.

We do as we are told.

First we get Bill into therapy, but then couples therapy is offered to us.

We went.

It was a shouting match.

We went again.

This is stupid.

We literally went into the appointment fine, and came out ready to punch each other in the face.

So what did we resolve to do?

We WILL go back next week, because we have the appointment, and it must be helping on some level, but we talked about resolving to work on our marriage ourselves. Waiting for a 1 hour therapy session once a week, which actually made us more mad than we went in, isn’t what we are looking for.

I will say this: Our therapist is wonderful.

I just don’t know if this is the right approach for us.

There are a bunch of things we both have said we would work on ourselves. So hopefully we can do more at home, than a 60 minute shouting match (which, think about this…he’s a Marine, and I’m Italian-American…….it gets SO LOUD). Our poor therapist.

Working through relationship problems are hard, especially when you’re working with mental health road-blocks, like having PTSD, TBI, or depression. It means we need to work on those things AND the relationship.

We haven’t given up.

We resolved to stop saying things like “well then move out” or asking “do you just want a divorce?”

We feel like taking those things out of the vocabulary may help the healing.

Be well,

Tina

 

Life

It Sounded Like A Good Idea…

Lots of things SOUND like a great idea, but then I get myself into whatever it is, and realize it wasn’t such a great idea after all. Prime example = getting my tubes tied sounded brilliant. The reality? Well, I’ll get to the horror of that in a moment.

Let us start at the beginning. In the beginning, lots of women walked around claiming to love being pregnant. They carried on about it being the best time of their life, their friends exclaimed how they were “glowing,” life was wonderful, and they were so sure they would be sad to see their bump go.

THIS IS A LIE.

I hated being pregnant. I got sick, I was always tired, I felt like a beached whale, and I was generally miserable the entire time.

Nothing about me glowed.

Nothing about me loved waddling around at high speeds, trying to get shit done during my short bursts of energy.

Nothing about me wanted the bump forcing me into perpetual yoga pants to stay  a bump.

I.WAS.MISERABLE.

I could go out on a limb and guess Bill was miserable too, but he as already affirmed this on more than one occasion….and to many people.

I digress. Here is a picture of the end product of the last pregnancy. Totally worth it! (Photograph by Selena Stoney – Newborn Photographer)

liam

When we were sure we were done having our own children (something I was never so sure of as I was when I was in labor both times) Bill and I decided we needed a more permanent method of birth control.

While I acknowledge our VA hospital here is one of the best available, I still don’t feel totally comfortable with a VA doctor near my husbands junk…with a knife.

So I said I would take the bullet (see what I did there? you know, since he’s the Marine…..anyway).

Thursday morning we packed up both kids and headed to the surgery center. I was fully prepared to go in, get my tubes tied, go home, and in a few hours resume my life.

WRONG!

I could not understand why they were making such a big deal about not driving, working, signing important papers, picking up the children, etc etc, until I was waking up from anesthesia. The only way I can describe the pain is it felt like a sumo wrestler had ripped out my girl parts and was jumping on them. At one point the nurse asked me about my pain on the pain scale of one to ten. (I’m dying and she wants me to think of a number between one and ten….seriously???!!!!)

I couldn’t really give her a number because I couldn’t think straight with the pain and the anesthesia, so I told her I had given birth naturally to both my kids and did not need medication, but now I needed ALL the medication. She then gave me some cocktail and I was out like a light again.

I don’t really know how I made it through childbirth without any medication, but a simple 30 minute procedure caused me to need more than one type of pain medication and to have to take some at home.

Bill called my boss and told him I was not going to work my day job on Friday. He was MORE than understanding. I guess he saw me trying to be a badass and already figured I would be out. I did however go to my night job. I supposed I technically went to work the next day, but I did have ample time to rest. Bill was awesome and took care of kids and everything else at home. I did a whole lot of sleeping (and not as much reading as I thought I would with all that time off).

So here we are on Sunday evening. I have so much I wanted to read tonight, and even more I wanted to write, but at 8:07, I’m turning in so I can work tomorrow. If the pain keeps me up tonight, I can think about what a great idea I thought this whole thing would be, and how wrong I really was. In the long run, having your tubes tied is better for someone with endometriosis (which I have had) and I won’t have to remember to take a pill every day, but dang…that shit hurts!

Please remind me of this next time I have another “brilliant” idea….